Living with disabilities in France

Mickaël is back.

In January 2019, at the start of the second semester of the university year, that was just about the best news any of us had heard in a long time.

Mickaël, a student who had abruptly disappeared from the classroom two years earlier, was returning to complete his “licence,” the French equivalent of a bachelor’s degree. He was picking up where he had left off when the disease first took hold.

In the beginning, the symptoms looked like those of the flu: fever and aching joints. By the time he was diagnosed with meningitis, it was almost too late.

He survived. He emerged from the coma, his mental faculties intact. However, he lost his fingertips and both feet; his legs had to be amputated at mid-calf. He also suffered a severe loss of hearing and sight. For months he lay in a hospital bed. Then he spent months learning daily life all over again.

Today Mickaël travels on his own from Melun, a city to the south of Paris, to Université Paris 8, located in Saint-Denis, in the northern suburbs of the capital, over forty miles from his home. To attend 9 o’clock class, Mickaël must get up at 4:30 AM. Once he has showered, put on his protheses, dressed and made himself breakfast, he walks to the nearest bus stop, using only a cane that neatly folds when he’s in the metro. This is the first step in his journey.

The bus drops him at the suburban train station of Melun. From there he has a 30-minute train ride to Gare de Lyon, the major Parisian train station to points south. Once there, he walks ten minutes underground to line 14 of the metro.

This line, the most recent addition to the Paris system, is the only one adapted to the needs of travelers with disabilities. For all the other lines, it’s hit or miss. Sometimes there may be an escalator, rarer still, an elevator. In most stations, there are flights of stairs to climb.

After a bus, a train and a metro, Mickaël is not yet at his final destination. There is still one more leg of his journey, a change of metro lines, underground corridors to traverse, and then a ride on line 13. In French, I call it “la bien nommée,” the metro line that lives up to its name.

If “13” is an unlucky number, so are all of us who must put up with the overcrowding and delays, which are the daily lot of commuters who depend on this line. Mickaël often stands for the dozen stops of his ride.

Finally, a few minutes before nine, he arrives at the end of the line, Saint-Denis Université. There is an elevator in this station. He takes it to street level and hurries to class. At the end of the day, he’ll repeat the same itinerary in reverse, returning home after 9 in the evening.

Once home, he’ll make supper. Then he’ll take off his protheses and remove his hearing aid for the night. Thanks to them and to his glasses, Mickaël is able to attend classes and navigate a transportation system that has some serious catching up to do before it can claim to accommodate passengers with disabilities.

Such is public transportation in the Paris region. I might add, such is France.

In early May, caravans of the handicapped, les handicapés as they are called in France, set out from points all over the country, “on the road for (their) rights,” converging in major French cities on May 14th. On that day, a protest march was held in Paris, with slogans such as “liberté, égalité, mobilité,” and “my handicap is exclusion from major services.” The association “France Handicap” presented a letter to President Macron, reminding him of his campaign promise to make the handicapped a priority.

So far, reality has not kept pace, and his government’s measures in favor of the disabled are timid or limited to good intentions.

At this point, it may be interesting to note the French have chosen the English term “handicapped” for those with disabilities. This word, handicapé, came into use in France in the 1980’s as the inclusive term for all those with disabilities. In the United States, at about the same time, the term “handicapped” was discarded in favor of the “person-first” approach: a person has a disability; a handicap is a barrier or circumstance.

In other words, the Paris metro system is full of 'handicaps': stations with lots of stairs and no elevator or escalator. There is also the 'circumstance' of employment discrimination. In France, the unemployment rate among persons with disabilities (19%) is double that of the general population.

The current Secretary of State in charge of the handicapped, Sophie Cluzel, has pledged to create 100,000 new jobs for persons with disabilities by 2022. The government has also reaffirmed its commitment to making accessible all buildings open to the public. This is a work-in-progress and there is still a long way to go.

Throughout Europe, May 16th was Duo-Day. Begun in the Republic of Ireland in 2008, Duo-Day has set as its goal the bringing together of prospective employers and persons with disabilities. For example, after an initial contact through an on-line site, lawyers with disabilities meet the heads of law firms, disabled gardeners meet the owners of greenhouses or flower shops. On the evening news that day, a journalist in a wheelchair presented a part of the national news.

Meanwhile Mickaël has almost completed his bachelor’s degree. Despite an open sore on his knee, he travels regularly to university, a commute of over 2 hours.

He also battles with bureaucracy, one of the greatest handicaps a person with disabilities must face. A young man of unshakeable good spirits, he has met obstacle after obstacle. He is entitled to free transportation, but only in the zone where he lives. Because he is determined to finish his studies at the university where he began, located in a different zone, he must pay most of the ride out of his own pocket and this adds up to a lot of euros each day.

Mickaël has also learned to drive a standard transmission car. He thought this would entitle him to an aid for the purchase of a vehicle. The official response was “non.” He can only receive aid for a car adapted for “handicapés.”

Yes, Mickaël is back and may he go far—for a person with disabilities must strive ten times harder than the rest of us.